Thoughts on the coronavirus / COVID19 and the autistic community

CW: Coronavirus / COVID19

I saw a post on social media yesterday  saying the COVID19 / coronavirus was a media beat up. I could understand where the poster was coming from as there has been some rather sensational reporting about the crisis but the virus is definitely not a beat-up. COVID19 is a real crisis and people are right to be concerned. I have been thinking about the impact of the virus on the autistic community and will unpack my thoughts here.

Autistic people tend to be more anxious than the general population and it is understandable that we are anxious about the virus. I have been worrying about its impact for a while. I think catastrophising is probably a more appropriate word. It is hard to know how anxious to be. Should I be buying supplies in case I am quarantined? Am I at risk of catching the virus? Are my friends and family at risk? Should I still travel interstate for speaking gigs? Will my speaking gigs be cancelled? Will the economy fail and will I lose my job as a result? I could go on for a while. I think the best advice I have – for others and myself – is to try and just worry about the issues at hand and deal with things on a day to day basis.

Another commentator suggested that COVID19 will be beneficial to autistic employees because it will result in lots of working from home which favours us. Thi is sort of correct but needs to be taken in context. Many jobs do not have capacity for remote working. And autistic people who are not employed are probably less likely to be hired in the current circumstances. As economies shrink, so too does the hiring of people from diverse backgrounds. In a smaller economy it is likely that autistic job seekers will be less likely to find work.

I have seen humorous memes about autistic people benefiting from self-isolating. This is amusing and probably true but many quarantine situations will involve being confined with other people. This could be a nightmare for autistic people. I am currently in a rehabilitation hospital and I have been running the quarantine scenario through my head a lot and I really don’t want to be confined to a building with the same people for weeks on end! 

Another thing which people have been saying is that ‘I will be OK because I am not old or sick.’ A lot of the media about the virus has also focussed on this. I find this highly problematic. It is as if older and sick people don’t matter and the virus is not a concern because young and healthy people are not victims. My parents are in their seventies and I would be devastated if they caught the virus. It is not OK that the virus kills people that ‘aren’t me’.

Talking to children about the virus is a tricky thing. I have seen a few resources out there including one through Footprint Books. You don’t want to terrify them but you do want them to know things like the importance of hand hygiene and give some context to the media discussion fo COVID19.  Autistic kids (and adults) may be highly distressed if an event they were looking forward to is cancelled. Autistic children may become very focussed on the crisis and be highly anxious. It is a fine balance, somewhere between feeding into their fears or at the other extreme telling them that there is nothing to worry about. It may be worth scheduling a time where the can ask parents any questions they have about the virus. 

Panic buying is something which many of us find baffling. One of the issues with it is that it drives others to panic buy even if they don’t want to. For example if all the toilet paper is gone from the supermarket, someone who otherwise wouldn’t panic buy will grab any toilet paper if they see any because they know it will be gone soon. 

I am actually very concerned about the COVID 19 crisis and struggling with my anxiety. I am worried about the hospital I am in being quarantined or repurposed leading to my early discharge, I am worried about the economy and my job being affected, especially as I have been on sick leave for the past five months. I am worried about people I love and care for contracting the virus. I am hoping a vaccine is developed soon but until then I just have to manage my worry.  This is a very scary thing with the potential to disrupt society across the globe. 

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3 thoughts on “Thoughts on the coronavirus / COVID19 and the autistic community

  1. My anxiety is around people I care about and value, too. Okay, due to my IVIG infusions, I’ll probably be okay, but a few weeks ago, my nephew contracted gastro, then my brother, then my sister-in-law, then my mother, then my father, but I was spared. Okay, I wash my hands a lot, too. Any anxiety I have regarding my health is based around my doctor. She is the only doctor in 45 years who I’ve seen who I’ve liked. I did have a brief period away, when I was on the coast, and others may have tried hard, but they couldn’t fill the shoes. My GP assures me she’ll keep practicing for as long as she’s in good health, and as she’s had a nasty divorce from a very nasty man, she has had to rebuild her life and has admitted that women aren’t paid as well as men. That comforts me somewhat. What I also love about my GP is that she doesn’t work in a group practice (I HATE group practices) as I lost all confidence in a group practice when the receptionist asked if we wanted to see a doctor I didn’t like. I see one doctor and that’s all.

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  2. Good article Yenn. Thanks for sharing. I would suggest that most people are thinking the same sort of catastrophising and anxious thoughts but as you say all we can do is deal with each matter as it comes to hand and keep on going, one foot in front of the other.

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  3. Thank you, Yenn. One way to talk to Autistic children about the COVID19 pandemic is to do so factually. My Autistic father always talked to me that way about my own medical conditions i.e. what is known and unknown, what further steps he was going to take for me, how to manage medications, the function of each medication, and how to practice prevention. Knowing the facts delivered calmly and with authority is stabilising in a highly unstable situation such as this. I have a lifelong autoimmune condition. I’ve practised since the age of five everything being recommended now. Autistic children can ‘get’ this if explained and supported well.

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