Cw: mental health, self-harm
I am autistic and ADHD and have a diagnosis of schizophrenia and anxiety. I have spent over ten years of my life in institutions of one kind of another, and many mental health clinical settings – hospital and residential services.
Whenever I talk about mental health clinicians I have to ensure I am not entirely critical as there are some great clinicians out there but sadly, in my experience, there are a lot of mental health workers who could benefit greatly from more understanding of autism and who have treated me with discrimination and harsh judgement and misdiagnosed me.
I had a misdiagnosis for many years – borderline personality disorder This is a diagnosis which is frequently – and often incorrectly- given to autistic people and especially women and non-binary folks. I had that misdiagnosis in the 1990s which was a time where people who engaged in any kind of self-harm were generally viewed to be ‘attention seeking’. I remember my dad reflecting on this and saying if a person wanted attention, they would probably be an actor or wear bright clothes rather than hurt themselves! The attitudes I faced from mental health workers as an autistic person with a diagnosis of borderline personality disorder was pretty grim.
In the 1990s and 2000s autism was not well understood in mental health clinical settings and the level of discrimination faced by me – and presumably many other autistic folks accessing mental health services – was immense. I have an autobiography which talks about all these things including the time I spent in prison which was mostly a justice response to a health problem. There were very few appropriate services out there and those that existed were not geared to making life easier for autistic people!
Many people criticise me for being negative about menta health services. I will say that I have experienced some excellent support particularly in recent years. I now have what I understand to be more appropriate diagnoses – autism, ADHD, schizophrenia / schizoaffective and anxiety. The diagnosis determines the treatment and the treatment I have now is working well. I am still anxious every time I get a new worker of psychiatrist. I take a very strong anti-psychotic medication called clozapine. This means I have to have monthly blood tests and frequent visits to the local mental health clinic. The psychiatrists there tend to only be around for a few months and every time I get a new one it is really stressful as I worry they will misdiagnose me again!
I still think mental health clinicians could benefit form more understanding of autism and neurodivergence. This is an ongoing issue. In this space knowledge = power and autistic people accessing mental health services would benefit from those treating them knowing more. People should feel confident to access mental health support not anxious and frightened they will be discriminated against. I have a book on the topic (I’m Yenn – I have a book on most autism-related topics!!) This one I coauthored with Dr Emma Goodall and Dr Jane Nugent. It covers a range of issues around autism and mental health including accessing services. I would love for mental health clinicians to read our book as I think it would help them to work more effectively with autistic people and deliver services which are inclusive and respectful – and beneficial! I liken poor treatment by mental health workers as being like calling in the plumber to fix a dripping tap and instead of doing this they break your toilet! So mental health clinicians need to metaphorically fix the tap and please don’t break the toilet!












