As an advocate I feel compelled to write about April. I would rather not truth be known but I think it is important as there are still a lot of unhelpful attitudes around autism ‘awareness’. However, I don’t want to write some negative piece despairing about all that is wrong in the world. Instead I want to talk about the past almost 20 years of my advocacy career and how things have changed and continue to change.
I wrote my first book, my autobiography, with the support of the amazing Polly Samuel in 2005. I was all of a sudden thrust into the world of autism advocacy – whether I wanted to be or not! People these days call me a trailblazer and that I am the giant in the expression ‘standing on the shoulders of giants’ but when I first started my advocacy journey I was terrified! It was a different time. Of the advocates still working now in Australia, around five of them were around when I started out. Neurodiversity was a very new concept at the time and talking about anything positive around autism was met with incredulity is dismissiveness from allistic folks. Social media barely existed and most of the discussion around autism came from neurotypical parents of autistic kids, many of whom were not very autism positive to say the least!
As time went on things changed, Firstly they changed for me! For the first few years after my autobiography came out I was not a very passionate advocate. I did talks if asked but I was too busy enjoying my new professional job and being passionate about that to think much about the autistic community. In 2012 everything changed. I met a young autistic man who had been severely disabled by the people in his life not giving him the chance to do anything. He had been shielded from any issues or challenges and when I told him I was an autistic public servant who had written a book he called me a liar and said it was impossible. Enter Yennski’s passion for advocacy! I was horrified by how this man had been so severely limited by the attitudes of others and their deficits thinking. I realised that if there was one person like this then there would surely be more. So I set about trying to change the world – and I am still on that path now over ten years later!
Over the years I have seen a lot of changes in attitudes around autism. When I started out:
- there was very little view of autism having any positives
- The only representation of autistic people in media etc was negative and based in stereotypes
- Autism was seen as a negative – a curse or an affliction
- Autistic voices were rare or non-existent in the dialogue around autism
- There were hardly any autistic advocates or activists
- ‘Warrior parents’ drove the narrative
- ABA and other harmful therapies went unchecked
Of course lots of this still goes on but the difference is that it usually gets challenged. I remember a few years ago seeing an article online about neurodiversity. I was delighted and amazed as it was the first reference to neurodiversity in the popular media that I had ever seen. When I looked at the names of the autistic people that were quoted there were some I had never come across! I was delighted.
And now to April… Autism awareness used to be the April thing. Many autistic people really don’t like this. I certainly don’t. The event used to be driven by a very problematic organisation which is stuck in the dark ages and the whole idea of awareness bothers me. I mean bullies are aware of their victim being different. Awareness alone ifs pretty pointless and unhelpful. In the past few years wether have bene some great challenges to the whole April light it up blue thing. At first it was just autistic activists who raised issues but now it is more mainstream and even neurotypical people who have little or no lived experience are willing and even keen to promote a more inclusive approach. There are other days and events which are more inclusive too, such as Neurodiversity Week in March and Neurodivergent / Autistic Pride Day in June.
I will finish with another anecdote from my life – I do love a good anecdote! A while back a certain TV personality decided to shoot their mouth off and blaming his poor behaviour on his being autistic – despite the fact that he wasn’t autistic – and autism is neither a reason or an excuse for violence. I saw the posts and so many people had criticised this person for their poor behaviour. The criticism was from the mainstream, not just advocates. We still have a very long way to go but as someone who has been around for a very long time I can say with some hope that things are changing and often changing for the better.
I’m not ‘aware’ for April, I’m reflective and filled with hope for the future. And after almost twenty years of doing this I wonder if I might get to retire sometime? I think the current group of amazing advocates and activists probably demonstrates that as a possibility… but I will still write the books. I love writing books!










