I love this quote. It is from one of my favourite writers, the awesome Oscar Wilde. I was thinking about this quote recently because some people have been responding to my posts in a manner which suggests that they think I have a charmed life, and this got me thinking about perspectives on the experience of others.
I actually DO have a charmed life. I own my property, I am ridiculously accomplished, and I have a biological family who love me unconditionally. These are really wonderful things, and I respect that many people don’t have access to these sorts of things and as such they represent a form of privilege.
However – and this is a big however – my life, like many other people’s lives, is quite challenging. Being me is hard. Being anyone is hard. Being a human in this world is full of challenges. For me those challenges include my somewhat dodgy mental health, facing bigotry and ableism as an AuDHD person and hatred and transphobia around my gender. I think the mental health issues are probably the biggest one. Anxiety has been a close companion from when I was a child. For me experiencing an extended period of high anxiety almost always results in psychosis which puts me out of action – sometimes for years and is very scary and unpleasant. When I was a public servant, I had access to sick leave and income protection insurance. Now I don’t so if I get unwell, I will not get any income. This is terrifying – an contributes to problem anxiety which could lead to the outcome I am worried about! Ugh.
One of my NDIS workers said to me on numerous occasions that I have no issues around finding employment because I am white, educated and speak English well. While that is true, I am also in my fifties, have significant disability and mental health things and a criminal history – all of which are things which contribute to making it challenging for me to get a job. So yes, I have some areas of privilege, absolutely – but I also have barriers and challenges.
It is dangerous to make judgements around how someone experiences life and to say that they will or won’t experience something. You can’t assume about someone’s experiences without knowing the full situation. For example I have a mortgage – yay to that but it is also a cause of major stress. I have to come up with a large sum of money every fortnight. if don’t get enough income I will need to sell it. This contributes it my anxiety in a big way and makes life hard. While I accept that I am extremely fortunate to have my own home it does come with challenges. I often feel nostalgia for when I was a student because I had zero responsibilities. I lived in public housing – which had its own challenges – but there were no issues around losing that property. The women upstairs stalking me was admittedly not a lot of fun but there was a lot to be said for not having a big financial commitment that I might not be able to maintain!
I do not regret my life. I mostly really like where things are up to now. I have a wonderful life, but it is definitely not without its challenges! I think we need to ask rather than assume when talking about our assessment of how someone experiences their life. My accomplishments for example have prompted some people to subject me to jealousy and lateral violence but to me they are just my work. I can write a book in four weeks but there are things I can’t do. I can’t drive a car, and I would be a horrible parent, but I don’t go around being jealous of people who can drive cars or those who are parents. We all have our own skills and interests. To me writing books and giving talks and doing consultancy are just part of my work. They really aren’t that exciting!
I was in hospital once and a psychiatric nurse was telling me to do something I didn’t want to do. I said to her ‘What would you know about mental health issues?’ And instantly regretted it. She said that I couldn’t know what she experienced and she was absolutely right. This exchange really affected me. We can’t know what others are going through. If someone looks like they are coping they actually might not be. The front we present to the world may be a mask. We might seem to be doing well when in reality we are not. This is especially true for autistic people. And if we have done a number of exciting and worthwhile things that is great but is does not necessarily reflect on how well we are coping – or not. So please don’t assume I have an easy life. I don’t. I have a life with some good bits and some really difficult bits. I have my own unique set of circumstances like everyone else does. These is never a reason for jealousy or lateral violence.










